Our sweet little girl, Mia Kai, was diagnosed with sagittal synostosis (a form of Craniosynostosis) at four weeks old. Basically her skull fused together prematurely over one of her soft spots, giving the brain little room to grow. Rather than her head rounding out, it became elongated in the back and a ridgeline formed down the center of the top of her head. She had cranial reconstructive surgery June 28th which consisted of a neurosurgeon and plastic surgeon separating her skull then placing wires and dissolvable screws in her skull in order to hold it into place. They stitched it up with dissolvable stitches underneath the scalp and placed steri strips over the incision. The major recovery time typically only lasts for one to two weeks. The nurse told us that she's one of the youngest patients to undergo this procedure at Vanderbilt (she turned exactly 12 weeks old on the day of the procedure). Our pediatrician actually noticed it the day I was discharged from the hospital only three days after giving birth. For him to notice that quickly is a miracle in itself. Once again, it's such a tough road but God has been so gracious and faithful through it all!
This is her story...
