We've decided that Mia Kai has basically waited until we were on Hawaiian soil to hit any of her milestones. She started crawling around ten months while on Kaua'i then took her first steps at 13 months old, once again on Kaua'i. She was nine and ten months old during this trip and I have to say, this is the age I captured some of my favorite photos of this sweet girl. We got her ears pierced, hiked the Wai Koa Loop on Kauai, hung out on Baby Beach in Poipu, walked around the International Market Place on Oahu, and ate our first starfruit!
Read MoreMia Kai // One Year Old!
Happiest of birthdays to our little pineapple, Mia Kai!! A few of our friends and family gathered this past weekend to celebrate - and, oh, what a sweet celebration it was! As we stood around together before blessing the food, I looked around and felt a bit emotional. What a year this has been! It's been a fantastic year - watching our little Mia Kai grow and learn but it's also been a bit challenging. Between her surgery and well, everything that else that the first year of life entails for a baby and first-time parents, we've had our ups and downs. We're deeply grateful for our community, the people who have walked so closely with us this past year and the sweet ways God has carried us through it all. To see everyone gathered together at one time... it was comforting and a wave of overwhelming amount of peace flooded over us. But I digress. :)
Read MoreCraniosynostosis // Post-Op
Well, the doctor said to leave her steri strips on for another five days (unless they fall off by themselves, which a few already have). It made this momma and daddy cringe a little, knowing we'll have to take themselves off by ourselves. Fortunately he gave us some tips for removal. The exciting news?! Mia Kai looks great and we got the okay for going back out into public and for travel! We love our sweet Mia Kai and we praise God for His healing, strength and guidance through all of this!
Read MoreCraniosynostosis // Day Five
Wahoo!! The doctors came by and confirmed that today is Discharge Day!!!
Read MoreCraniosynostosis // Day Four
We are rejoicing this morning!!! Mia Kai's swelling has decreased dramatically and she even tried to smile at JD! She started wiggling when she tried to smile because she got so excited but then started crying because she realized she is still in pain. Sweet girl! She's trying so hard! She had a pretty great night. The nurses had to draw her bloodwork which she got pretty upset about but who wouldn't?? We cannot contain our excitement as we see our little one progress with healing so quickly! It's been a long three days but it also feels like it's flown by because of how quickly she's healing when we look at the long scheme of things. We praise God for healing our Little Pineapple so swiftly! She still has a ways to go with the swelling (particularly in the back of her head and the rest of her body) but she's doing so great!
Read MoreCraniosynostosis // Day Three
MK had a fairly decent night. They had to draw blood from her arm because, once again, none of her IV lines would draw enough. It was awful. Besides that, she slept well. Her pain level still seems intolerable but the nurses are giving her a steady stream of meds and that's helping tremendously. Her temp is normal, heart beat is steady and her blood work came back okay. Her hematocrit level dropped again - not low enough to get another transfusion yet but it's at 24... If it drops any lower, they'll most likely need to give her more blood. Her sodium is a little low but nothing to be concerned about yet. Today we're celebrating the drain removal and her little left eye peeking out every so often, just to let us know she see us!!
Read MoreCraniosynostosis // Day Two
Last night was pretty awful. She's been in so much pain. Nurses have been taking exceptional care of her and she's been on a steady rotation of pain medicine. Her fever and heart rate got up pretty high. She is so over the nurses checking her all of the time. Haha! She ate well throughout the night but she's not eating great today. They started fluids again to help with hydration. They took her head dressing off this morning and have been able to take off two of her no-no's (little cast-like things to keep her from pulling on the lines). Her head is so round and bulbous now. We're astounded that we can already tell a difference in shape.
Read MoreCraniosynostosis // Day One
Surgery Day. We went in around 5:00 that morning, signed her in and waited. We were taken to the holding room around 7:00 am and the nurses and doctors came by to say good morning. They took her basic med info (blood pressure, temp, etc) then left us alone to love on Mia Kai before the nurses took her back to surgery. I cried a little but I think I got it all out the night before. It seems to be that this is the part that most parents have the toughest time with though. It's funny because we never thought her head was that misshapen until we saw how tall her head looks in the photos below.
Read MoreCraniosynostosis // Pre-Op
It's been a long day of pokes and prodding for this little girl but she's been a champion through it all. So proud of this brave little girl! Pre-op testing seemed to be successful and we'll be going in tomorrow to get her precious little skull fixed.
I also wanted to share my heart from the night before surgery. Leading up to that night, our hearts were steady. Seeking Christ and trusting in everything He was doing. But it hit hard the night leading up to her surgery...
Read MoreBaby Pineapple // Mia Kai's First Halloween Costume!
We surprisingly debated on how to dress up Mia Kai for Halloween but ultimately decided that, well, she's our little pineapple. She just needs to be a pineapple. ;)
With a little help from the Delia Creates tutorial, I made Mia Kai's mini pineapple hat using two shades of felt then painted hearts on her yellow onesie and hat. We were a tad nervous about putting her little hat on since she's not technically supposed to wear anything that constricts her head for long periods of time since her surgery. But she loved it and was actually pretty cool about wearing it! The onesie was actually a part of an outfit I bought from Babies 'R' Us on sale. It had two additional ruffles around the neck, one with a lemon pattern, so I removed those with my handy seam ripper and kept the sweet little top ruffle. We bought her sweet tutu from LillyBear Creations on Etsy, who I just adored working with!!
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